Involuntary Movements

ID-100125335 (2)

Image by renjith krishnan at FreeDigitalPhotos.net

So many years ago I started having trouble with loss of muscle tone in my face.  Kind of like a Bells Palsy.  It would last for 10 mins or so and then resolve.  I thought nothing of it – or maybe I was afraid to think anything of it.  Eventually it progressed to involuntary arm movements and then to one very scary pseudo seizure. I call it pseudo because I was fully conscious so it wasn’t a real seizure.  Back then I saw several doctors – some thought I was making it up – finally I received a diagnosis – Essential Myoclonus.  I was put on medication that seemed to mostly keep it under control and things were ok.   Eventually though I decided I wanted to ween myself off the drugs – at that time I was taking Neurontin (Gabapentin), Klonopin (Clonazepam) and Ativan (Lorazepam).  I was getting married and I knew we wanted children, so in my mind if I could come off of all the medications I should.  And I successfully did – one at a time.  The Neurontin was the easiest.  I ended up joining Benzo Buddies which was an online group to help come off the Klonopin and Ativan as they are both Benzodiazepines.  I was super careful, using the titration taper plan.  Finally I was off everything.  And for the most part I was fine…

read more